tag:blogger.com,1999:blog-50426403752236715712024-03-06T02:20:22.044-05:00On The Lupie Side Of The StreetThe story of living my life with the Lupus Fairy.Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.comBlogger92125tag:blogger.com,1999:blog-5042640375223671571.post-8035627199289094012011-03-17T18:02:00.002-04:002011-03-17T18:05:32.884-04:00I've MovedI know I haven't posted on here for a LONG time but I have decided to move my blog over to Tumblr. It feels like a much easier, more streamlined blog than Blogger. I haven't figured out how to move all of my posts over yet, but if you want to read new posts, head on over to http://loverlylupieme.tumblr.com/Thank you for being such faithful readers. I'm hoping with an easier blogging format, I'll Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com0tag:blogger.com,1999:blog-5042640375223671571.post-18961714085765709432010-07-02T18:25:00.006-04:002010-07-03T11:22:49.036-04:00There's No Place Like RoamI don't like to talk about my family too much on here. I figure they have their owns lives and if they want the world to know about it, they can write their own blog. They deserve their privacy if that's what they want. But this is something I just can't hold in any longer and I've been holding it in for about two weeks now.My favorite Uncle, my only Uncle actually, was diagnosed with lung cancerLoverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com3tag:blogger.com,1999:blog-5042640375223671571.post-71259062890111048842010-06-02T21:48:00.007-04:002010-06-02T22:37:47.259-04:00For My NiecesAs most of you know, life has been rough. In between unresolved health problems, crazy insurance issues, and feeling so lost and hopeless, I've been a mess. But today I went to go see my two "nieces." Even if it was just for a few hours, I felt more centered and calmer than I've felt in the past few weeks.I needed to see them today. I know that no matter what happens in my life, I know these two Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com2tag:blogger.com,1999:blog-5042640375223671571.post-25852771567519349952010-05-28T21:21:00.004-04:002010-05-28T22:08:04.756-04:00Help, I Need HopeThis past week has been incredibly difficult. I have been faced with insurance challenges, health troubles, and a streak of bad luck. This week has made me cry, scream, hate myself, hate the world, and question the entire way of the universe. I sat on my floor, alone, curled up in a ball yelling to absolutely no one "I DON'T UNDERSTAND! I JUST CANNOT UNDERSTAND ANYMORE!" I feel like tears have Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com2tag:blogger.com,1999:blog-5042640375223671571.post-81686951271247479282010-04-28T22:10:00.005-04:002010-04-28T23:03:48.770-04:00Who Am I Going On For Today?The first question I always get asked when people get to know me is "What is Lupus?" The second question I get asked after I explain myself is "How do you go on?" How do I go on? It's a question I ask myself every single day that I live here on this earth. How am I supposed to go on when my body feels like it cannot? How do I manage to live another day when my heart says "It's not worth it." I Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com2tag:blogger.com,1999:blog-5042640375223671571.post-51323785194327202292010-04-21T09:58:00.007-04:002010-04-21T21:11:59.857-04:00The Lupus Of NewsI'm not one who watches any of these late night commentary sort of shows found on Comedy Central. Stephen Colbert, Jon Stewart and the like really don't interest me. They are among the hundreds of commentators out there who really only let off steam. Sure, some parts of the general population find their shows to be amusing. I on the other hand, do not.Last night Twitter was all a buzz because on Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com5tag:blogger.com,1999:blog-5042640375223671571.post-90537734956310035212010-01-22T20:28:00.004-05:002010-01-22T21:03:30.714-05:00Scarves From The HeartI have had the week from hell. When I mean hell, I mean H-E-L-L. It has been absolutely horrific, one thing right after another. I've been having pretty severe chest pains for a bit of time now and I finally went to the doctor for it. If you didn't know, I'm very much a grin and bear it person. Turns out my heart is a tad bit swollen, I can totally thank lupus for that one. I also got x-ray Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com4tag:blogger.com,1999:blog-5042640375223671571.post-90338926982069904602009-12-27T20:49:00.005-05:002009-12-27T21:34:23.654-05:00The Power of a MugEvery couple of years I like to get a new travel mug. My beloved old one with penguins in a snow scene that is printed on a metallic background is getting cracked and leaky. As much as I hate to see it go, I also dislike pouring hot tea on myself on accident. Luckily the great breaking of the travel mug coincided with a holiday that I know and love, Christmas. For the past few months, I've been Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com1tag:blogger.com,1999:blog-5042640375223671571.post-16091302882451936192009-12-20T15:53:00.003-05:002009-12-20T16:25:37.690-05:00I Feel Purple TodayLast night I had a great conversation with my friend on the telephone. I was laying in bed, frustrated about how I felt, and how most people don't understand. When I look completely healthy and radiant, it doesn't mean that I am. It's hard enough for most of the general population to understand an auto immune disorder such as lupus. But it's even harder when most days when the person, such as me,Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com3tag:blogger.com,1999:blog-5042640375223671571.post-19718350713298559482009-12-12T20:48:00.004-05:002009-12-12T21:35:31.184-05:00Christmas HopeI am quite possibly one of the biggest Christmas fanatics you could ever meet. I'm the type who starts looking forward to Christmas in October. I'm one of those people who puts up the Christmas tree and decorations on Thanksgiving day. I love Christmas music and I listen to the local radio station that plays it constantly through Christmas day beginning on Thanksgiving. I enjoy Christmas crafts, Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com1tag:blogger.com,1999:blog-5042640375223671571.post-28689276009914967492009-10-23T18:21:00.006-04:002009-10-23T19:28:07.201-04:00Friends Come In Two TypesIt's a Friday night but it isn't just any Friday night, it's a special Friday night. Right now I should be dressed up, my hair should be brushed, my make up should be gorgeous, and I would be surrounded by my friends. We would be celebrating the fact that I'm turning 24 years old (not technically until this coming Tuesday). Guess what? I'm not out with my friends, I'm at home, in my room, Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com2tag:blogger.com,1999:blog-5042640375223671571.post-83830251773576226182009-10-22T13:57:00.006-04:002009-10-22T14:29:37.350-04:00Let Life Be SimpleDear Readers,This is my 100th blog post. I can hardly believe that I have actually written 100 blogs. It seems like just yesterday I had this crazy notion to start this blog. It started out as a way for me to chronicle my life with lupus. Originally it was only supposed to be about lupus. But at a certain point I decided to do something that almost felt dangerous and forbidden. I opened up. This Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com0tag:blogger.com,1999:blog-5042640375223671571.post-14429946944984126252009-10-20T11:50:00.004-04:002009-10-20T12:16:56.024-04:00Standing On My Soap BoxI don't typically talk politics, not on this blog and not in day to day conversation. It's something I don't like talking about, not that it doesn't interest me, but I don't like expressing my political opinion. But there is something I need to get out, it eats away at me every time I read the headlines. A government run health care system.Yes, in theory, it sounds marvelous! Health care for Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com0tag:blogger.com,1999:blog-5042640375223671571.post-70119540613348802782009-10-11T16:17:00.004-04:002009-10-11T17:06:40.769-04:00A Few Of My Favorite ThingsThis morning I was in the shower and I was shampooing my hair for the second time, yes, I always wash my hair twice. I realized in that moment how much I love the way my hair feels during that second shampoo. How the tendrils of my hair intertwine with the sudsy white mass that covers my scalp. In that moment, everything feels so smooth, clean, and simply perfect. It got me thinking that I shouldLoverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com1tag:blogger.com,1999:blog-5042640375223671571.post-20571555763259242792009-10-09T11:33:00.003-04:002009-10-09T12:09:42.847-04:00Wishing To Be MoreI haven't always been sick, I used to be a healthy, happy, and vibrant girl. I felt like I was a good person, that I was doing the right things, that I was who I was supposed to be. But life changes, it moves on, and it took me along even though I protested. I changed and I didn't have a choice in the matter. My body changed and yet my spirit screamed "No! Stop! Just let me be the old Erika for Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com1tag:blogger.com,1999:blog-5042640375223671571.post-71076645606614795012009-10-06T18:24:00.004-04:002009-10-06T18:53:07.814-04:00Stuck Between A Virus And A VaccineI love the fall and winter and I know it's coming when the morning air gets a chill. When the leaves change from their lush green to oranges, reds, and yellows that paint the trees. I know my favorite times of year are coming when I see pumpkins, turkeys, and Christmas trees all at once. I get so excited for October because my Birthday is at the end of the month. I get excited for November Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com1tag:blogger.com,1999:blog-5042640375223671571.post-723666930530305422009-10-03T19:11:00.004-04:002009-10-03T20:24:51.320-04:00That Is How I'll Do ItThis afternoon I was hanging out with a really close friend. While I haven't known her for a very long period of time, only four months or so, I feel like I've known her forever. We were sitting outside in the shade in front of a Starbucks enjoying our iced green teas. At some point during our conversation the topic of my health came up. She made two comments that really stuck with me throughout Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com4tag:blogger.com,1999:blog-5042640375223671571.post-70053883279773909132009-09-26T18:32:00.003-04:002009-09-26T18:59:45.934-04:00I'm Not NormalThis past few weeks have been nothing but a giant reminder for me, that I'm not normal. It's been the little things that have really gotten to me. It's the foods I can't eat, like anything sugary, acidic, or fried. It's the activities I can't do, like staying up late and partying with friends. It's the feelings I get throughout the day, one minute I'm as fine as I can be and the next I feel like Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com1tag:blogger.com,1999:blog-5042640375223671571.post-88994716571502775832009-08-29T20:10:00.002-04:002009-08-29T20:14:39.969-04:00A Life RememberedOne of the not so fun parts about having lupus is the inability to remember much of anything. I can't tell you what I did two days ago. I have a general idea because my days pretty much seem to be the same. But I don't know if I hung out with anyone in particular or did anything special. Yesterday, I received a letter in the mail from a relative who I used to be very close to. In the letter she Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com1tag:blogger.com,1999:blog-5042640375223671571.post-64772170451140056432009-08-27T13:57:00.005-04:002009-08-27T14:52:19.993-04:00Lupus vs. Erika99.9% of the time I'm a strong person, I have to be with lupus, there isn't another option. Lupus is an every day battle with me, at some point in my day it's going to affect me. I can't remember the last time I felt completely normal, like the way I used to feel before I got sick. I have my good days which I am extremely thankful for. I have my bad days which I push through and move on from. Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com0tag:blogger.com,1999:blog-5042640375223671571.post-54225229967350951332009-07-16T20:01:00.004-04:002009-07-16T20:52:14.516-04:00The Ah-maz-ing PotionToday I hung out with one of my closest friends and his daughter. We went to story time at the library and as I looked at all the children, all I could think was what amazing little things they are. They were still so young, I'm guessing under the age of two. They are small yet resilient, the world is their playground, and they are filled with joy. Even when they cry, it isn't long before they Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com2tag:blogger.com,1999:blog-5042640375223671571.post-71529555425283839392009-07-14T16:49:00.004-04:002009-07-14T17:36:51.563-04:00I Want The Fairy TaleHere lately I've been thinking a lot about love and relationships and how I can tie all of that into my life. I tell myself that I'm going to be alone, that I'm better off that way. I convince myself that falling in love will only lead to heart break that leaves me in shambles. I force myself to believe that I'm not meant to be in a relationship anymore. I see myself as damaged goods, who's goingLoverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com1tag:blogger.com,1999:blog-5042640375223671571.post-55740975626021718732009-07-09T18:13:00.005-04:002009-07-09T18:56:01.652-04:00Living In The MomentToday when I was at work I was given the task of going outside and rearranging items and cleaning everything. I was thinking to myself how much my life has changed, how much I have changed. I am not the same person that I was back in 2006, when I was somewhat healthy. My life was taken from underneath my feet, it was then crumpled up, and shoved in a trashcan. I was the the "no hope" case. But Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com2tag:blogger.com,1999:blog-5042640375223671571.post-49756069488712143632009-06-29T19:10:00.004-04:002009-06-29T19:48:37.434-04:00A Little Slip Of HopeOver the weekend, a really good friend of mine bought be a present. I didn't know what to expect when I was told I was getting one. So I was surprised when I was handed a small slip of paper. When I looked to see what it was, I saw it was a lottery ticket. A mega millions ticket where the estimated jackpot is $94,000,000. You're probably thinking big deal? Right? Well, you're wrong.This lottery Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com0tag:blogger.com,1999:blog-5042640375223671571.post-42064960713294188382009-06-28T08:10:00.004-04:002009-06-28T09:02:28.351-04:00Becoming ErikaAfter being awake all night from a bout of insomnia, I've made a lot of decisions. A lot of final decisions, meaning no ifs, ands, or buts. Starting today, I'm going to be me. If I feel happy, darn it all I'm going to be happy! If I feel sad, well I may just shed a tear or two and be sad. If I'm angry, I'm going to let all of that rage flow through and out of me. If I don't feel good, I might sayLoverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com0