tag:blogger.com,1999:blog-50426403752236715712011-12-24T20:12:18.872-05:00The story of living my life with the Lupus Fairy.Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.comBlogger921100tag:blogger.com,1999:blog-5042640375223671571.post-8035627199289094012011-03-17T18:02:00.002-04:002011-03-17T18:05:32.884-04:00

I know I haven't posted on here for a LONG time but I have decided to move my blog over to Tumblr. It feels like a much easier, more streamlined blog than Blogger. I haven't figured out how to move all of my posts over yet, but if you want to read new posts, head on over to http://loverlylupieme.tumblr.com/Thank you for being such faithful readers. I'm hoping with an easier blogging format, I'll

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com0tag:blogger.com,1999:blog-5042640375223671571.post-18961714085765709432010-07-02T18:25:00.006-04:002010-07-03T11:22:49.036-04:00

I don't like to talk about my family too much on here. I figure they have their owns lives and if they want the world to know about it, they can write their own blog. They deserve their privacy if that's what they want. But this is something I just can't hold in any longer and I've been holding it in for about two weeks now.My favorite Uncle, my only Uncle actually, was diagnosed with lung cancer

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com3tag:blogger.com,1999:blog-5042640375223671571.post-71259062890111048842010-06-02T21:48:00.007-04:002010-06-02T22:37:47.259-04:00

As most of you know, life has been rough. In between unresolved health problems, crazy insurance issues, and feeling so lost and hopeless, I've been a mess. But today I went to go see my two "nieces." Even if it was just for a few hours, I felt more centered and calmer than I've felt in the past few weeks.I needed to see them today. I know that no matter what happens in my life, I know these two

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com2tag:blogger.com,1999:blog-5042640375223671571.post-25852771567519349952010-05-28T21:21:00.004-04:002010-05-28T22:08:04.756-04:00

This past week has been incredibly difficult. I have been faced with insurance challenges, health troubles, and a streak of bad luck. This week has made me cry, scream, hate myself, hate the world, and question the entire way of the universe. I sat on my floor, alone, curled up in a ball yelling to absolutely no one "I DON'T UNDERSTAND! I JUST CANNOT UNDERSTAND ANYMORE!" I feel like tears have

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com2tag:blogger.com,1999:blog-5042640375223671571.post-81686951271247479282010-04-28T22:10:00.005-04:002010-04-28T23:03:48.770-04:00

The first question I always get asked when people get to know me is "What is Lupus?" The second question I get asked after I explain myself is "How do you go on?" How do I go on? It's a question I ask myself every single day that I live here on this earth. How am I supposed to go on when my body feels like it cannot? How do I manage to live another day when my heart says "It's not worth it." I

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com2tag:blogger.com,1999:blog-5042640375223671571.post-51323785194327202292010-04-21T09:58:00.007-04:002010-04-21T21:11:59.857-04:00

I'm not one who watches any of these late night commentary sort of shows found on Comedy Central. Stephen Colbert, Jon Stewart and the like really don't interest me. They are among the hundreds of commentators out there who really only let off steam. Sure, some parts of the general population find their shows to be amusing. I on the other hand, do not.Last night Twitter was all a buzz because on

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com5tag:blogger.com,1999:blog-5042640375223671571.post-90537734956310035212010-01-22T20:28:00.004-05:002010-01-22T21:03:30.714-05:00

I have had the week from hell. When I mean hell, I mean H-E-L-L. It has been absolutely horrific, one thing right after another. I've been having pretty severe chest pains for a bit of time now and I finally went to the doctor for it. If you didn't know, I'm very much a grin and bear it person. Turns out my heart is a tad bit swollen, I can totally thank lupus for that one. I also got x-ray

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com4tag:blogger.com,1999:blog-5042640375223671571.post-90338926982069904602009-12-27T20:49:00.005-05:002009-12-27T21:34:23.654-05:00

Every couple of years I like to get a new travel mug. My beloved old one with penguins in a snow scene that is printed on a metallic background is getting cracked and leaky. As much as I hate to see it go, I also dislike pouring hot tea on myself on accident. Luckily the great breaking of the travel mug coincided with a holiday that I know and love, Christmas. For the past few months, I've been

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com1tag:blogger.com,1999:blog-5042640375223671571.post-16091302882451936192009-12-20T15:53:00.003-05:002009-12-20T16:25:37.690-05:00

Last night I had a great conversation with my friend on the telephone. I was laying in bed, frustrated about how I felt, and how most people don't understand. When I look completely healthy and radiant, it doesn't mean that I am. It's hard enough for most of the general population to understand an auto immune disorder such as lupus. But it's even harder when most days when the person, such as me,

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com3tag:blogger.com,1999:blog-5042640375223671571.post-19718350713298559482009-12-12T20:48:00.004-05:002009-12-12T21:35:31.184-05:00

I am quite possibly one of the biggest Christmas fanatics you could ever meet. I'm the type who starts looking forward to Christmas in October. I'm one of those people who puts up the Christmas tree and decorations on Thanksgiving day. I love Christmas music and I listen to the local radio station that plays it constantly through Christmas day beginning on Thanksgiving. I enjoy Christmas crafts,

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com1tag:blogger.com,1999:blog-5042640375223671571.post-28689276009914967492009-10-23T18:21:00.006-04:002009-10-23T19:28:07.201-04:00

It's a Friday night but it isn't just any Friday night, it's a special Friday night. Right now I should be dressed up, my hair should be brushed, my make up should be gorgeous, and I would be surrounded by my friends. We would be celebrating the fact that I'm turning 24 years old (not technically until this coming Tuesday). Guess what? I'm not out with my friends, I'm at home, in my room,

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com2tag:blogger.com,1999:blog-5042640375223671571.post-83830251773576226182009-10-22T13:57:00.006-04:002009-10-22T14:29:37.350-04:00

Dear Readers,This is my 100th blog post. I can hardly believe that I have actually written 100 blogs. It seems like just yesterday I had this crazy notion to start this blog. It started out as a way for me to chronicle my life with lupus. Originally it was only supposed to be about lupus. But at a certain point I decided to do something that almost felt dangerous and forbidden. I opened up. This

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com0tag:blogger.com,1999:blog-5042640375223671571.post-14429946944984126252009-10-20T11:50:00.004-04:002009-10-20T12:16:56.024-04:00

I don't typically talk politics, not on this blog and not in day to day conversation. It's something I don't like talking about, not that it doesn't interest me, but I don't like expressing my political opinion. But there is something I need to get out, it eats away at me every time I read the headlines. A government run health care system.Yes, in theory, it sounds marvelous! Health care for

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com0tag:blogger.com,1999:blog-5042640375223671571.post-70119540613348802782009-10-11T16:17:00.004-04:002009-10-11T17:06:40.769-04:00

This morning I was in the shower and I was shampooing my hair for the second time, yes, I always wash my hair twice. I realized in that moment how much I love the way my hair feels during that second shampoo. How the tendrils of my hair intertwine with the sudsy white mass that covers my scalp. In that moment, everything feels so smooth, clean, and simply perfect. It got me thinking that I should

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com1tag:blogger.com,1999:blog-5042640375223671571.post-20571555763259242792009-10-09T11:33:00.003-04:002009-10-09T12:09:42.847-04:00

I haven't always been sick, I used to be a healthy, happy, and vibrant girl. I felt like I was a good person, that I was doing the right things, that I was who I was supposed to be. But life changes, it moves on, and it took me along even though I protested. I changed and I didn't have a choice in the matter. My body changed and yet my spirit screamed "No! Stop! Just let me be the old Erika for

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com1tag:blogger.com,1999:blog-5042640375223671571.post-71076645606614795012009-10-06T18:24:00.004-04:002009-10-06T18:53:07.814-04:00

I love the fall and winter and I know it's coming when the morning air gets a chill. When the leaves change from their lush green to oranges, reds, and yellows that paint the trees. I know my favorite times of year are coming when I see pumpkins, turkeys, and Christmas trees all at once. I get so excited for October because my Birthday is at the end of the month. I get excited for November

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com1tag:blogger.com,1999:blog-5042640375223671571.post-723666930530305422009-10-03T19:11:00.004-04:002009-10-03T20:24:51.320-04:00

This afternoon I was hanging out with a really close friend. While I haven't known her for a very long period of time, only four months or so, I feel like I've known her forever. We were sitting outside in the shade in front of a Starbucks enjoying our iced green teas. At some point during our conversation the topic of my health came up. She made two comments that really stuck with me throughout

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com4tag:blogger.com,1999:blog-5042640375223671571.post-70053883279773909132009-09-26T18:32:00.003-04:002009-09-26T18:59:45.934-04:00

This past few weeks have been nothing but a giant reminder for me, that I'm not normal. It's been the little things that have really gotten to me. It's the foods I can't eat, like anything sugary, acidic, or fried. It's the activities I can't do, like staying up late and partying with friends. It's the feelings I get throughout the day, one minute I'm as fine as I can be and the next I feel like

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com1tag:blogger.com,1999:blog-5042640375223671571.post-88994716571502775832009-08-29T20:10:00.002-04:002009-08-29T20:14:39.969-04:00

One of the not so fun parts about having lupus is the inability to remember much of anything. I can't tell you what I did two days ago. I have a general idea because my days pretty much seem to be the same. But I don't know if I hung out with anyone in particular or did anything special. Yesterday, I received a letter in the mail from a relative who I used to be very close to. In the letter she

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com1tag:blogger.com,1999:blog-5042640375223671571.post-64772170451140056432009-08-27T13:57:00.005-04:002009-08-27T14:52:19.993-04:00

99.9% of the time I'm a strong person, I have to be with lupus, there isn't another option. Lupus is an every day battle with me, at some point in my day it's going to affect me. I can't remember the last time I felt completely normal, like the way I used to feel before I got sick. I have my good days which I am extremely thankful for. I have my bad days which I push through and move on from.

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com0tag:blogger.com,1999:blog-5042640375223671571.post-54225229967350951332009-07-16T20:01:00.004-04:002009-07-16T20:52:14.516-04:00

Today I hung out with one of my closest friends and his daughter. We went to story time at the library and as I looked at all the children, all I could think was what amazing little things they are. They were still so young, I'm guessing under the age of two. They are small yet resilient, the world is their playground, and they are filled with joy. Even when they cry, it isn't long before they

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com2tag:blogger.com,1999:blog-5042640375223671571.post-71529555425283839392009-07-14T16:49:00.004-04:002009-07-14T17:36:51.563-04:00

Here lately I've been thinking a lot about love and relationships and how I can tie all of that into my life. I tell myself that I'm going to be alone, that I'm better off that way. I convince myself that falling in love will only lead to heart break that leaves me in shambles. I force myself to believe that I'm not meant to be in a relationship anymore. I see myself as damaged goods, who's going

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com1tag:blogger.com,1999:blog-5042640375223671571.post-55740975626021718732009-07-09T18:13:00.005-04:002009-07-09T18:56:01.652-04:00

Today when I was at work I was given the task of going outside and rearranging items and cleaning everything. I was thinking to myself how much my life has changed, how much I have changed. I am not the same person that I was back in 2006, when I was somewhat healthy. My life was taken from underneath my feet, it was then crumpled up, and shoved in a trashcan. I was the the "no hope" case. But

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com2tag:blogger.com,1999:blog-5042640375223671571.post-49756069488712143632009-06-29T19:10:00.004-04:002009-06-29T19:48:37.434-04:00

Over the weekend, a really good friend of mine bought be a present. I didn't know what to expect when I was told I was getting one. So I was surprised when I was handed a small slip of paper. When I looked to see what it was, I saw it was a lottery ticket. A mega millions ticket where the estimated jackpot is $94,000,000. You're probably thinking big deal? Right? Well, you're wrong.This lottery

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com0tag:blogger.com,1999:blog-5042640375223671571.post-42064960713294188382009-06-28T08:10:00.004-04:002009-06-28T09:02:28.351-04:00

After being awake all night from a bout of insomnia, I've made a lot of decisions. A lot of final decisions, meaning no ifs, ands, or buts. Starting today, I'm going to be me. If I feel happy, darn it all I'm going to be happy! If I feel sad, well I may just shed a tear or two and be sad. If I'm angry, I'm going to let all of that rage flow through and out of me. If I don't feel good, I might say

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com0tag:blogger.com,1999:blog-5042640375223671571.post-24030347950953565422009-06-24T19:48:00.002-04:002009-06-24T20:09:21.787-04:00

Dear Lupus,I know that you love taking residence in my body. As much as I detest your presence I am unfortunately stuck with you. I wish you would just pack up and leave, in the same way that allergies do every spring. I know my body is all warm, comfy, and let's face it, dysfunctional. I understand that it's a mansion to you and you rule the roost. Well guess what? If I had my way, I would have

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com0tag:blogger.com,1999:blog-5042640375223671571.post-55541641280675443772009-06-22T12:50:00.006-04:002009-06-22T13:45:19.637-04:00

I had an absolutely amazing weekend! I've been working so hard here lately to get my life back. I have a job, even if it is only part time and temporary. I'm trying to figure out a new career path that will work with my body instead of against it. I'm also figuring out what my body can and cannot handle. Being outside, even in the shade, with sunscreen, for two days in a row makes my body very

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com0tag:blogger.com,1999:blog-5042640375223671571.post-62288851823523553852009-06-15T17:39:00.006-04:002009-06-15T18:30:46.585-04:00

I hate my body. I hate, hate, hate, hate, hate, hate, HATE myself. Everyone tells me "You're lucky to be alive." On days like this, I don't care if I'm alive or not. I hate the fact that I have days that I really look forward to, like a special occasion. It's on those days that my body has to screw up, act up, and be an all around pain. It's on those days that if anything can go wrong, it will go

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com4tag:blogger.com,1999:blog-5042640375223671571.post-89125724270779125442009-06-14T16:51:00.002-04:002009-06-14T18:17:08.463-04:00

So... I know I went AWOL and I apologize to all of my faithful readers. It isn't that life has been busy, I simply have not felt like writing. I think that most bloggers have their own periods of absence because that is the way life works. I haven't been inspired to write, or to even create art! I've been pretty down in the dumps until recently. Drum roll please... I have a job! Now before you go

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com0tag:blogger.com,1999:blog-5042640375223671571.post-15785733530269871882009-06-02T18:14:00.002-04:002009-06-02T19:12:51.972-04:00

Never in my wildest dreams would I have said I wanted a career in the medical field. I never would have dreamed of myself working at a doctor's office or a hospital. But I feel my experiences have changed my way of thinking. I've been seriously considering it and honestly at this point in my life, I can't see myself doing anything else. As much as I am interested in social work, I can't see

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com0tag:blogger.com,1999:blog-5042640375223671571.post-72897490005591355292009-06-01T21:50:00.003-04:002009-06-01T22:31:34.227-04:00

After thinking about what I wanted to write about, I finally thought of it. First of all, I don't know if anyone else out there with lupus has this problem or if it's just me. I sometimes cannot make a sentence that other people understand. Now it's not like I'm talking gibberish and putting words together that don't make sense. My Mother often looks at me like I'm an alien because she doesn't

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com1tag:blogger.com,1999:blog-5042640375223671571.post-80739526980836497532009-05-30T11:48:00.003-04:002009-05-30T13:12:18.161-04:00

Instead of cleaning like I'm supposed to be doing, I'm sitting here and writing this blog. What can I say? It's a Saturday and as much as I love cleaning and the end result, I would rather be out having fun. Well I don't have money or anyone currently available to have fun with. So I have a feeling I'll be spending this Saturday alone with the wood polish and vacuum cleaner. Thrilling!I need to

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com0tag:blogger.com,1999:blog-5042640375223671571.post-64166387626134424652009-05-29T10:56:00.003-04:002009-05-29T19:45:19.002-04:00

I hate a hand out, I really do. I am the type of person who would rather work hard and earn what I want instead of it being given to me. Am I grateful if someone gives me something? Of course I am! I am usually so grateful words cannot describe how I feel. I also hate asking for help, I like to believe that I can do it all on my own when I really can't. I try hard though to make it work, even if

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com2tag:blogger.com,1999:blog-5042640375223671571.post-25896499752176406462009-05-28T10:01:00.004-04:002009-05-28T10:57:17.886-04:00

I had a fabulous dream last night, it was a dream come true sort of dream. I dreamed that a friend of mine came into a lot of money, and I mean a lot! Now this friend came up to me and gave me a check for $7,000. Crazy, I know! The rule was that I had to pick a charity to give this money to. I was thrilled, ecstatic, overjoyed, I was feeling everything that could be wonderful. I felt in this

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com1tag:blogger.com,1999:blog-5042640375223671571.post-29440555935458252822009-05-27T13:38:00.005-04:002009-05-27T14:11:45.346-04:00

I had a fabulous day yesterday, a much needed break. I spent the day hanging out with my sister Lindsay and our friend Michelle. We grilled out munching on delicious kabobs, attempted to swim even though it was way too cold, and sat outside constantly changing the conversation. I was then introduced to a lovely game on Play Station 3, Little Big Planet. At first I didn't understand the concept of

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com0tag:blogger.com,1999:blog-5042640375223671571.post-34636739017455277462009-05-24T10:40:00.005-04:002009-05-25T07:36:26.652-04:00

"What about the normal people?" I often ask myself. What about those people like me who are just down on their luck and need a little help in life? What about us? Who is willing to help us? No one. That sometimes bothers me, the average person who needs a little help, can't get it. Their lives aren't bad enough, they haven't gone through enough, therefore they don't "deserve" help.Don't get me

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com2tag:blogger.com,1999:blog-5042640375223671571.post-83844873575669881842009-05-21T09:57:00.005-04:002009-05-21T10:49:08.257-04:00

"Be the change you wish to see in the world." I think that quote is one of the most recognizable quotes in the world. Despite it being well known and sometimes over used, it holds such great meaning for me."Be the change" I can be that! All it takes is one person to put a ripple in a river, I am a stone that could cause that. My one action could cause a ripple. That ripple will travel down the

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com1tag:blogger.com,1999:blog-5042640375223671571.post-21257781070965027812009-05-20T19:11:00.003-04:002009-05-20T19:56:06.167-04:00

Often times when faced with a chronic illness you have to make choices. You choose which is more important, to go outside and get the paper or to pour yourself a bowl of cereal. You choose whether doing your hair is more important than putting on makeup or shaving your face. You choose whether or not to go from business to business dropping off applications or to sit at home and fax. Every day is

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com3tag:blogger.com,1999:blog-5042640375223671571.post-8195813350700085312009-05-19T18:10:00.003-04:002009-05-19T18:41:05.818-04:00

Today has been a good day, a very good day indeed. Last week I applied for numerous positions for being a medical receptionist. Out of the blue this morning I received a phone call from a potential employer. I was asked if I was available to do a phone interview later in the day, it happened to be the same time I was supposed to volunteer. I of course said yes, a job is a job and this is only my

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com0tag:blogger.com,1999:blog-5042640375223671571.post-2287675592537086242009-05-18T15:50:00.004-04:002009-05-18T16:19:21.239-04:00

I had a great morning today. I have officially met my first person, in real life, who has lupus. I know many, many people online who have it. But it felt amazing to meet someone in person who I share a connection with. Not only do we share the common bond of lupus, but we also understand each other. We understand the weird twitches that we both get and yet other people stare at us thinking "Are

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com2tag:blogger.com,1999:blog-5042640375223671571.post-37706977933253661272009-05-16T10:55:00.006-04:002009-05-16T11:33:05.928-04:00

Well I think I might be back from the land of temporary sadness. I think all the stress from the past few weeks just came and dumped itself on me. Let's face it, we all have our bad days and yesterday felt beyond bad. You seriously cannot expect me to be peppy and optimistic every single day out of the year? I mean, of course you could but wouldn't that be a little bit unrealistic? I think we all

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com4tag:blogger.com,1999:blog-5042640375223671571.post-44144683325126873852009-05-15T12:13:00.005-04:002009-05-15T13:17:33.634-04:00

I have spent the past three hours scouring the wide world of Google and dialing phone numbers asking if a business was hiring. I have come to the conclusion that Richmond is the worst place to try and find a job in. I would probably have better luck in Russia and I don't even speak Russian. If I find a job soon, a job that I can handle working at, a job that doesn't require me to be on my feet

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com0tag:blogger.com,1999:blog-5042640375223671571.post-14224594007736019972009-05-14T10:23:00.004-04:002009-05-14T10:56:16.930-04:00

I'm still trying to remain positive despite the fact that job hunting is not going as well as I hoped it would. The more I thought about it, the more it made sense for me to look for a job in the medical field. No, not being a doctor or a nurse, but being a receptionist or medical biller. The problem I seem to be having is that most of these jobs require you to have experience in the field. How

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com0tag:blogger.com,1999:blog-5042640375223671571.post-75123652216047628662009-05-13T11:54:00.002-04:002009-05-13T12:18:33.525-04:00

Thanks to the wide world of Twitter, I decided to hop on the band wagon of positive thinking. For the next 21 days (as of yesterday) I will not complain. That's right, complaining will go out the window and positive thinking will walk in through the door. I'm hoping this doesn't sound like a complaint, but I'm having a difficult time differentiating between a general statement and a complaint. If

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com0tag:blogger.com,1999:blog-5042640375223671571.post-70171443545705996542009-05-11T09:52:00.004-04:002009-05-11T13:05:40.257-04:00

Yesterday I blogged about how it was World Lupus Day. On my Twitter, I was wishing people Happy World Lupus Day! I was reading other people's tweets (messages for non tweeters), and some people didn't say Happy World Lupus Day. They would simply state that it was World Lupus Day and why it mattered to them. For me, World Lupus Day was a happy occasion, it was a day for me to be thankful for the

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com0tag:blogger.com,1999:blog-5042640375223671571.post-62408167532029878982009-05-10T14:29:00.003-04:002009-05-10T15:45:54.513-04:00

Happy Mother's Day and World Lupus Day! Bisous!Erika

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com1tag:blogger.com,1999:blog-5042640375223671571.post-21264384233959885202009-05-09T10:00:00.002-04:002009-05-09T12:32:31.517-04:00

For the past few days I've been a bit on the down side. I've got what feels like 9384934839 things on my plate and none of them are getting cleared off. It feels like no one is understanding me and honestly, I'm getting tired of explaining myself. It's hard because everyone thinks I'm trying to be mean when I'm really not. The impact of not having a job, feeling like a loser, and having an

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com0tag:blogger.com,1999:blog-5042640375223671571.post-26622463750407517882009-05-08T18:51:00.002-04:002009-05-08T19:20:08.383-04:00

When most people are asked to describe me, I usually find out they say the following things about me:GivingEnthusiasticCaringOptimisticBraveWhen I think about those words, I begin to question them. Am I really that giving? Is my personality that enthusiastic? Do I really show a caring side? Am I always optimistic? And why do you think I'm brave? Sure, I love to paint pictures and give them away

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com0tag:blogger.com,1999:blog-5042640375223671571.post-65700699692289799162009-05-07T18:47:00.003-04:002009-05-07T19:20:42.167-04:00

Hey everyone! Here are the links as promised:Lupus Foundation of America main web page. If you need to know about lupus, go there!Lupus Now Magazine Creative Corner. This is where you will find my poem! I have lots of poems about lupus, but this is the first one I wrote. I bet y'all didn't know that I secretly write poetry.Lupus Foundation of America Blogspot. Or if you want just look to the

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com0tag:blogger.com,1999:blog-5042640375223671571.post-7423588820055038302009-05-07T13:00:00.003-04:002009-05-07T18:56:31.163-04:00

No, I have not been around coughing Mexican pigs. But that's the question that my rheumatologist asked me upon finding out that I have had a fever and sore throat as of lately. I suppose it would have been more professional if he asked "Have you been around persons who have been diagnosed with the H1N1 virus?" My doctor has the oddest ways of phrasing questions and I can't help but to find them

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com0tag:blogger.com,1999:blog-5042640375223671571.post-21839556539631792892009-05-06T18:49:00.004-04:002009-05-07T18:57:10.393-04:00

Well I didn't get the job I applied for last week. It seems as if they were only hiring for temporary employment and I supposed I didn't fill those qualifications. I would have been thrilled to do a bit of temp work, something for some back up cash to hold me over. Apparently if someone on their permanent staff quits, I'm next up to be called in. I hope that's the truth and not a lie said to make

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com0tag:blogger.com,1999:blog-5042640375223671571.post-52087187084673620602009-05-05T14:26:00.004-04:002009-05-07T18:58:11.239-04:00

I woke up this morning, hoping to be productive since I definitely was not productive yesterday. As soon as I got out of bed to make breakfast my body said "Excuse me, but I don't think so." Yes, my body talks to me and it can be quite rude! By the time I dragged my breakfast and myself up the stairs again, I knew I would have to give into my worst enemy. Bed rest. Ugh, the thought of it makes me

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com0tag:blogger.com,1999:blog-5042640375223671571.post-34920788106882812042009-05-04T18:52:00.004-04:002009-05-07T18:58:56.337-04:00

Today was supposed to be a productive day, unfortunately, it really wasn't. I woke up this morning feeling exhausted, I knew I wouldn't be able to do everything I had planned. When these days happen, it makes me nervous about beginning to work again. Am I supposed to risk calling in sick just because I am exhausted beyond belief? Will I looked at as lazy and be fired? I'm definitely not expecting

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com0tag:blogger.com,1999:blog-5042640375223671571.post-71429423927745619812009-05-03T19:04:00.003-04:002009-05-07T18:59:37.727-04:00

I'm at a loss on what to blog about! For once, I don't have something to say. Job hunting is still going slow with not many leads. Tomorrow I am going to pursue some leads and forge the trails on my own. That is of course after I go to the dentist for a lovely cleaning. I'm lucky I get my teeth cleaned every three months. Yes, it's more expensive but because I have lupus I don't have a choice.

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com1tag:blogger.com,1999:blog-5042640375223671571.post-84207357227335998882009-05-01T09:40:00.003-04:002009-05-01T11:20:02.016-04:00

Well, the job hunting has been somewhat unsuccessful this week. If you've been wondering where I have been, I've been out walking the pavement. I've called hundreds of businesses, and very few are hiring. All I can do is throw my application in the heap and hope for the best. Now I'm usually fairly optimistic about these sort of things. I used to get hired right on the spot, but that isn't the

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com0tag:blogger.com,1999:blog-5042640375223671571.post-58115832889483411872009-04-28T22:42:00.001-04:002009-05-01T11:20:35.777-04:00

I decided to make a virtual scrapbook with some of the photos I took this weekend. Enjoy!Bisous!Erika

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com1tag:blogger.com,1999:blog-5042640375223671571.post-514874583573679752009-04-27T20:55:00.004-04:002009-05-01T11:21:29.178-04:00

Sorry for my absence, again! I was out of town this weekend and at a lovely place called Shrinemont. I look forward to this church retreat every year. There is a seminar and a keynote speaker but every year I skip out on the seminar. I love learning, but when I have the choice of being cooped up in a room and being outside with nature, I'm going to choose being outside. Especially when I'm

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com0tag:blogger.com,1999:blog-5042640375223671571.post-71679225493850593942009-04-22T10:13:00.007-04:002009-05-01T11:22:05.457-04:00

Sorry I haven't updated in a while! I have been really busy here lately and in between being busy, I've been recovering from being busy. Over the weekend, a good friend of mine got married and I was invited to the wedding. I had such a good time and it was amazing to see some people whom I haven't seen in a while. It was lovely to be able to reconnect. The bride and groom were too cute for words

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com0tag:blogger.com,1999:blog-5042640375223671571.post-31989983361661837722009-04-17T19:05:00.004-04:002009-05-01T11:22:42.840-04:00

Ah! What a busy day! I've cleaned, cooked, baked, cleaned some more, went to Target, had a final dress fitting, now I'm back at home. Honestly, I'm exhausted and my version of exhausted is probably much different than yours. Take the tired feeling you have at the end of your worst day and multiply it by 100, that's what I feel on a day to day basis. And no, I'm not exaggerating, I'm also still

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com2tag:blogger.com,1999:blog-5042640375223671571.post-51737865632992105642009-04-16T19:52:00.004-04:002009-05-01T11:23:15.628-04:00

Today has been a really good day! My renal ultrasound came back in the clear so that means I probably just have an infection until further notice. I'm on antibiotics so hopefully the inflammation will go down soon. I'm still having some pain that comes and goes. Right now it's coming. I also have some stiffness and pain in my neck but I'm not really concerned for now. I think I've had such a

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com0tag:blogger.com,1999:blog-5042640375223671571.post-32508389930345822512009-04-15T18:22:00.004-04:002009-05-01T11:23:50.134-04:00

I have no idea why I am taking antibiotics when I don't have an infection. Oh yes, I know why! Just to be on the safe side. I love that about me, I can't ever take the dangerous route, I have to be safe all the time. I had the ultrasound of my renal system today to figure out what was wrong. Guess what? I still don't know what's wrong. Unfortunately I don't have the ability to read

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com0tag:blogger.com,1999:blog-5042640375223671571.post-22824811437137237402009-04-14T10:40:00.006-04:002009-05-07T19:02:06.739-04:00

Choices, choices. Which would you rather have, appendicitis or kidney issues? I'd rather have appendicitis. I have a 3:45 PM appointment with my internist to figure out what is going on. The pain started yesterday as a pain in the middle of my back and it went through to the middle of my abdomen. I woke up this morning with a horrendous pain in the right lower side of my back that again went

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com2tag:blogger.com,1999:blog-5042640375223671571.post-35671441726681361492009-04-13T17:23:00.003-04:002009-05-01T11:25:21.715-04:00

Don't fret, I'm still here! Here's a weekend update minus a Saturday Night Live skit. Over the weekend, I only walked on Saturday, I gave myself Easter off. I walked 1.80 miles on Saturday which wasn't a lot. But I've been extremely tired and running on empty here lately. On Sunday I woke up early and got ready for church. I went to the 11 AM service with Ariel. We both enjoyed catching up with

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com0tag:blogger.com,1999:blog-5042640375223671571.post-77933153710892459082009-04-10T15:25:00.009-04:002009-05-07T19:03:12.570-04:00

Sorry for my absence here lately! It's been spring break around the house and I've been quite busy. I'm still exercising, I'm walking an average of 2.5-3 miles a day. I know that it's not a lot but I'm trying and at least I'm getting a routine down. Today I walked 2.57 miles and then I also got on the stationary bike and biked a whopping one mile. Again, it's not a lot, I had to stop every

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com0tag:blogger.com,1999:blog-5042640375223671571.post-52502124000545707192009-04-07T19:29:00.005-04:002009-05-07T19:03:57.890-04:00

This afternoon I had an appointment for a consult for my mouth. I was on pins and needles, here's why. This saga has been going on since November, that's right, November! Insurance wouldn't cover me to see a specialist, so I had to go down to the dental clinic at MCV. Gah, what a scary experience! If I absolutely could not afford dental work, I would go there. But would I want to get parts

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com0tag:blogger.com,1999:blog-5042640375223671571.post-87085785404462101482009-04-06T20:03:00.004-04:002009-05-07T19:04:42.390-04:00

Please remind me that if ever am able to adopt, that if I have a child, I should always be there for the child. It doesn't matter how old they are, I should always be there. I should do everything in my power to help them, I should never degrade them and make them feel like a bad person. I should love and support them, no matter what. It doesn't matter how hard life is, I will step up to the

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com0tag:blogger.com,1999:blog-5042640375223671571.post-1485444239910273242009-04-05T15:48:00.004-04:002009-05-07T19:06:28.248-04:00

Sorry I haven't updated for the past few days. Life has been incredibly busy for me. Let me give you a bit of a recap. I cooked all day long on Friday! For those of you who don't know, I have a special diet that I keep up with. I don't eat processed foods, sugar, dairy, anything acidic, I also try to stay away from red meat. I cook all my meals for the week ahead of time and I portion them

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com0tag:blogger.com,1999:blog-5042640375223671571.post-23530588686553774632009-04-02T18:58:00.007-04:002009-05-07T19:06:55.770-04:00

I think today is going to go down in the books as my best day ever. What qualifies as the best day ever for a person varies with the person. A person's best day ever could be the day they got married, or the day they had their first child. The best day could be the day they graduated from college or the day they saw their grandchild graduate from high school. But today, April 2nd, 2009, I

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com0tag:blogger.com,1999:blog-5042640375223671571.post-53285509827501412172009-04-01T22:10:00.005-04:002009-05-07T19:07:29.298-04:00

So I went on the Life Is Good website tonight to stare at hats. Y'all already know I LOVE hats. Anyway, I wanted to see if they had anymore FUEL letters up. Well, lo and behold, my letter was up on the website! I'm in a state of shock!I love reading other people's life experiences and it helps me to be grateful for the blessings in my life. I also feel like I share a common thread with all

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com0tag:blogger.com,1999:blog-5042640375223671571.post-63044315017075307092009-04-01T16:35:00.007-04:002009-05-07T19:08:27.716-04:00

"But if you try sometimes, you'll get what you need." ~Mick Jagger and Keith Richards.I have realized here lately that I have not been my typical optimistic self. But today I got a little bit of a pick me up. Something that I totally wasn't expecting but managed to life my spirits. It reminded me that I need to stay positive even when life is a bit on the stinky side (like it has been). I

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com0tag:blogger.com,1999:blog-5042640375223671571.post-79363053219537635182009-04-01T13:10:00.006-04:002009-05-07T19:09:17.564-04:00

This morning I received a phone call from the practice that I saw a few weeks back. Remember, the place that wanted me to switch my diet around and take 10,000 supplements? Yeah, that place. It was the doctor who I was supposed to see a few weeks back but she wasn't available that day so I saw her colleague. Anyway, she saw that I had canceled my appointment for today and that my new doctor

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com2tag:blogger.com,1999:blog-5042640375223671571.post-66630766477987833582009-03-31T11:26:00.005-04:002009-05-07T19:09:51.581-04:00

I feel that I need to start exercising again. It's going to be so hard because I'm completely out of shape. Plus it's hard to get the motivation when everything hurts! I'd like to start walking, basically because it's low impact on my joints. It would probably be good for me to get some fresh air, but not the sun shine. Sunlight is my enemy but that's why there is sunscreen. Exercise is

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com2tag:blogger.com,1999:blog-5042640375223671571.post-80539173214556339902009-03-30T19:22:00.003-04:002009-05-07T19:10:38.624-04:00

For those of you who don't understand Dutch, the title is "It has gone kaputt!" Kaput basically means death, but not like human. For example, this evening I was making a gigantic pot of tea so I could make my herbal ice tea. I noticed the kettle was leaking from underneath the handle. This troubled my Mother so, she has never had to buy a tea kettle before. The one we have was a hand me down

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com2tag:blogger.com,1999:blog-5042640375223671571.post-79669011814024282952009-03-29T18:08:00.004-04:002009-05-07T19:10:58.977-04:00

I don't normally talk about my family because I am a fiercely private person. But today, I have been pushed to my limit. The past few years have been nothing but a battle between my father and I. It seems like no matter what I do, no matter how hard I try, it is never good enough for him. I try to be a good daughter, I am mostly always considerate and I attempt to be caring. But it is hard

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com0tag:blogger.com,1999:blog-5042640375223671571.post-62818379526747505892009-03-27T21:25:00.005-04:002009-05-07T19:11:41.476-04:00

Today has been a tad bit on the frustrating side. I just needed to get a hold of my labs that I got done a few weeks back. My primary care physician wanted me to come in this coming week. She also had apparently made some notes about some more supplements I should be taking. Here's what gets my goat... I'm all for nutritional supplements, but there is a key word "supplements." They are the

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com2tag:blogger.com,1999:blog-5042640375223671571.post-41489920308185301892009-03-26T20:54:00.006-04:002009-05-07T19:13:45.568-04:00

I'm sorry I didn't post yesterday, I've been too busy eating. Yes, eating. It is like I have fallen in love with food all over again. Everything sounds good, looks good, and tastes even better. It's as if my taste buds are alive again! My stomach is actually allowing me to digest food. I don't feel like I have a lead brick in my stomach for three days. I feel hungry in a matter of hours

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com0tag:blogger.com,1999:blog-5042640375223671571.post-83045139147750197772009-03-24T18:04:00.004-04:002009-05-07T19:14:16.440-04:00

Today I went and saw my cardiac electrophysiologist. Well, I felt like I was never going to see him. I kid you not, I was in the exam room for 45 minutes before he came in. I was falling asleep sitting up because I was so tired of waiting. Luckily, he was much nicer than my old cardiologist. I think my old cardiologist thought he knew everything and because of that, since he couldn't find

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com0tag:blogger.com,1999:blog-5042640375223671571.post-49873511166356754282009-03-23T16:36:00.004-04:002009-05-07T19:15:04.668-04:00

This morning I went in for my lovely upper GI endoscopy! The waiting room filled up quickly and I could tell the staff was running behind. It didn't help they were experiencing technological difficulties. I felt bad for them because they seemed really overwhelmed! My appointment was about 30 minutes late, but hey, that's life.I was called back there and was given a lovely hospital gown. It

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com0tag:blogger.com,1999:blog-5042640375223671571.post-62239739824830338172009-03-22T16:54:00.004-04:002009-05-07T19:15:34.277-04:00

This morning I went to church, for the first time since Ash Wednesday. For those of y'all who know me, I used to the quite the church goer. I was there practically every Sunday, sometimes almost all day. And you could usually find me at church during the week as well. I spent a lot of time at my church over the years, met a lot of people, worked different jobs, all while spreading a lot of

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com0tag:blogger.com,1999:blog-5042640375223671571.post-55989046257561358462009-03-21T22:12:00.004-04:002009-05-07T19:16:06.870-04:00

I don't exactly have anything new on the medical front to discuss. But I do have something on an inspirational level to share with y'all! Earlier this evening, I decided to send an email to the folks at Life Is Good. Most of you know that when I go outside, I'm sporting one of their lovely baseball caps. On their website, they have a page where people have shared their stories and how the

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com1tag:blogger.com,1999:blog-5042640375223671571.post-36505526918016896522009-03-20T17:54:00.008-04:002009-05-07T19:17:15.856-04:00

This morning at had an appointment with a new gastroenterologist. My old one was a doof, a big ol' doofy doof. He apparently liked "open and shut" cases. Way to go for discrimination and being an underachiever. Isn't part of life is to challenge yourself and expand your horizons? What about continuing education? Doctors should continue with their education throughout their career in order

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com3tag:blogger.com,1999:blog-5042640375223671571.post-75532778922959044122009-03-18T18:52:00.005-04:002009-05-07T19:18:36.040-04:00

I'm hoping that my decrepit laptop can handle one last blog post before it decides to die and go to technology heaven. Well, today has been quite informative, not really, but I'm pretending it is. After spending all last week in the hospital, I finally got to see my rheumatologist today. I apologized immensely, I was absolutely mortified about last week. First of all, I'm not a needy person,

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com1tag:blogger.com,1999:blog-5042640375223671571.post-68928248557607076182009-03-16T14:39:00.006-04:002009-05-07T19:19:11.228-04:00

Hi everyone! I just wanted to inform you that my technology is attempting to bite the dust. So if I go AWOL for a while, I'm probably not in the hospital, more than likely it means my laptop needs a defibrillator. It's been threatening to die for about three months now But I kept putting it off because it's busted up beyond repair and financially I haven't been able to get a new one. Now

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com0tag:blogger.com,1999:blog-5042640375223671571.post-64574541887162119312009-03-15T20:28:00.004-04:002009-05-07T19:19:47.303-04:00

Sorry I've been slacking on the blog front. I've been beyond exhausted and I think it was all left over from this past week.On Friday I saw a new GP at the advice of my Godmother. She's all into healing the mind, body, and soul. And in a way, it's a good concept. The place I went to was very, very nice but unfortunately I did not connect with the doctor. First of all, I'm so used to doing

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com0tag:blogger.com,1999:blog-5042640375223671571.post-50579718601109891202009-03-13T19:42:00.004-04:002009-03-15T21:10:03.392-04:00

Well I'm still sick. It's really no fun. I'm so exasperated. I'll finish off where I left off on my last post.Tuesday:11:20 PM arrive at St. Mary's.11:30 PM see the triage nurse.11:35 PM told to wait despite severe chest pain, dizziness, fading in and out of consciousness, dehydration, difficulty breathing, nausea, and tremors.Wednesday:12:45 AM taken back to ER, hooked up to monitors, EKG

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com0tag:blogger.com,1999:blog-5042640375223671571.post-39697412209763310112009-03-12T21:39:00.003-04:002009-03-12T22:10:57.101-04:00

Sorry, I've been AWOL here lately. Since Monday my life has been completely and totally horrific. I've managed to stay chipper and stress free despite the many disturbing experiences. I figured I would do a quick day by day recount.Monday:Had a lovely, relaxing morning with an amazing friend. Drank herbal tea and chatted about life.By 1:00 PM I had severe chest pain, weakness, dizziness, pain

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com0tag:blogger.com,1999:blog-5042640375223671571.post-86724250681941797872009-03-09T19:55:00.002-04:002009-03-09T21:01:13.007-04:00

Hey everyone! Well, today has been like an Indiana Jones adventure. It started out great, throw in some boulders, people shooting at me, and then I found the gold (meaning medicine). I figured if I didn't write a big huge blog I would have to answer to everyone individually. And I am way too drugged up to do that!This morning, I went to go have coffee with one of my closest friends. She used

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com0tag:blogger.com,1999:blog-5042640375223671571.post-64680596323279595712009-03-07T18:46:00.005-05:002009-03-07T19:25:38.534-05:00

Well the past few days have really forced me to get organized when it comes to medical records and things a person needs when going to the ER. For most people with a chronic illness, you have stacks and stacks of records, paperwork, insurance claims, appeals, lists of medication, past allergic reactions, it's pretty much your life typed down. It's hard to keep papers organized when you just

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com0tag:blogger.com,1999:blog-5042640375223671571.post-282120641945660782009-03-06T09:59:00.006-05:002009-03-06T10:51:05.127-05:00

Oh goodness, where do I start? Sorry I missed out on yesterday's post, I got a late start to my day and as it went on I felt worse and worse. It all started on Tuesday night right before I drifted off to sleep. All of a sudden I had a piercing headache that felt like someone was drilling into my temples. I have a high tolerance for pain, I also used to get migraines, so headaches don't

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com0tag:blogger.com,1999:blog-5042640375223671571.post-69070310755792077632009-03-04T12:21:00.002-05:002009-03-04T12:44:44.262-05:00

My sister thinks I should make this blog more personal. Well, my name is Erika, spelled with a "k" not a "c" not a "ck", I have to make that clear because you would be surprised how many people misspell my name. I'm not a very open person when it comes to talking face to face. I try to be as personal as I can be, but it's difficult. I would rather keep everything to myself. But when I

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com0tag:blogger.com,1999:blog-5042640375223671571.post-71210587859668240422009-03-03T19:00:00.000-05:002009-03-03T19:22:11.611-05:00

I just had a bit of a realization! I was wondering how the heck I was going to manage during the weeks that I have surgery. I'm not allowed to eat or drink for eight hours after my surgery. I'm hoping I can get an early morning appointment, 7 AM or so? I will wake up super early and just have enough water to take my medication. If my surgery ends by 10 AM, I will be allowed to drink

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com0tag:blogger.com,1999:blog-5042640375223671571.post-84255790273511230272009-03-03T15:08:00.000-05:002009-03-03T15:58:10.922-05:00

So this is my first post on this blog! Yippee! For those of you who don't know, about a month ago I was diagnosed with Systemic Lupus Erythematosus. I have been sick off and on for about 3 years and living with a very unappealing diagnosis. I was able to get a doctor to listen to me and take another look at my case from a different point of view. Lots of tests, paperwork, and waiting later

Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.com0